![Melanie Huntley](data:image/svg+xml,<svg xmlns="http://www.w3.org/2000/svg" width="16" height="16" fill="%231b1b1b" class="bi bi-person-fill" viewBox="0 0 16 16"><path d="M3 14s-1 0-1-1 1-4 6-4 6 3 6 4-1 1-1 1zm5-6a3 3 0 1 0 0-6 3 3 0 0 0 0 6"/></svg>)
Melanie Huntley
Directeur/Membre du Conseil chez
LGS Foundation, Inc.
Commercial Services
Profil
Melanie Huntley currently works as a Director at LGS Foundation, Inc.
Postes actifs de Melanie Huntley
| Sociétés | Poste | Début |
|---|---|---|
LGS Foundation, Inc.
 LGS Foundation, Inc. Miscellaneous Commercial ServicesCommercial Services LGS Foundation, Inc. is a nonprofit organization dedicated to supporting individuals and families affected by Lennox-Gastaut Syndrome (LGS), a rare, severe, and complex form of epilepsy that typically begins in early childhood and leads to lifelong disability. The private company is based in San Diego, CA. The foundation serves as a convener of patients, families, clinicians, and researchers, providing education, resources, and community support to improve quality of life and advance care. It emphasizes a collaborative, patient-family-centered approach to accelerate research and treatment development through initiatives such as research grants and programs, maintains a research agenda focusing on disease biology, biomarkers, mortality, quality of life, and disease-modifying therapies, and promotes open data sharing and clinical trial participation. Key programs include community-driven advocacy efforts, conferences to advance clinical research and care, awareness and fundraising events, and extensive support services for patients, caregivers, siblings, and bereaved families. The company was founded in 2008 by Christina SanInocencio. | Directeur/Membre du Conseil | - |
Expériences
Fonctions occupées
Actives
Inactives
Sociétés cotées
Entreprise privées
Sociétés liées
| Entreprise privées | 1 |
|---|---|
LGS Foundation, Inc.
LGS Foundation, Inc. Miscellaneous Commercial ServicesCommercial Services LGS Foundation, Inc. is a nonprofit organization dedicated to supporting individuals and families affected by Lennox-Gastaut Syndrome (LGS), a rare, severe, and complex form of epilepsy that typically begins in early childhood and leads to lifelong disability. The private company is based in San Diego, CA. The foundation serves as a convener of patients, families, clinicians, and researchers, providing education, resources, and community support to improve quality of life and advance care. It emphasizes a collaborative, patient-family-centered approach to accelerate research and treatment development through initiatives such as research grants and programs, maintains a research agenda focusing on disease biology, biomarkers, mortality, quality of life, and disease-modifying therapies, and promotes open data sharing and clinical trial participation. Key programs include community-driven advocacy efforts, conferences to advance clinical research and care, awareness and fundraising events, and extensive support services for patients, caregivers, siblings, and bereaved families. The company was founded in 2008 by Christina SanInocencio. | Commercial Services |
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